People are considered to be approaching end of life when they have been informed by their doctor that they are likely to die within the next 12 months, although, it isn’t always possible to predict.
We believe it is your right, to be able to access excellent standards of care and support at end of life and, you should be entitled to choose where you want the care and support you need to be provided.
Hull City Council and NHS Hull are committed to working with people and their families to plan for the end of their life. The 'Living Well' documentation is used by your local social care and health teams. It is also a useful source of information for you
You can find the latest government policies and strategies regarding end of life care using the website link provided.
NHS Choices have also created an End of life guide for people who are approaching the end of their life and people who are caring for others who are approaching the end of their life.
You can find information about your rights and choices, including
- refusing treatment
- setting down your wishes for your future treatment
- how to give someone the legal right to make decisions for you if you are no longer capable
The NHS choices guide also contains information about the importance of talking to your family and carers about dying, about your wishes and how to go about it.
There is no right or wrong way to feel when you hear bad news about your health. What is for sure is that being able to talk to someone about it is important to being in a position to cope with the impact. End of life care is not just about the practical things, like medicines, treatments, observations and scans it also involves psychological, social and spiritual support for you and your family or carers.
Palliative care service
If you have an illness that can’t be cured, palliative care serves to help you be as comfortable as possible, managing your pain and other symptoms.
There are many healthcare professionals who may be involved in providing palliative care. Under the supervision of your GP, community nurses manage the care of people in the community with advancing and progressing illness.
Care is provided seven days a week, flexibly throughout the day and night and is focused on helping people who are considered to be in the end stage of their illness to stay at home, or to assist their timely transfer home from hospital.
If you are approaching end of life, or caring for someone who is, and you want to find out more about the care and support available to you, contact your GP, who is your main point iof contact regarding all of your health needs.
There are also a number of organisations both; locally and nationally, that can provide you with information and advice about end of life;
Dove House Hospice
Dove House Hospice cares for anyone who lives in Hull and the East Riding of Yorkshire area and is over the age of 18 who has a life limiting illness. Referrals may be made by any professional involved with the care of the patient and people can also refer themselves; supported through thier GP. Referrals can be made between 8.30am to 4.30pm Monday to Friday.
They offer support to people who require
- pain and symptom management
- care in the last days of life
- family support (social, spiritual, psychological, bereavement)
- respite care
You can telephone the Dove House Hospice medical secretaries on 01482 785 721
Macmillan Cancer Information Centre
The Macmillan Cancer Information Centre helps to guide people to the information they need including
- Advice and Guidance on finding the best information materials on all aspects of living with cancer
- Internet access to guide people to appropriate information
- The opportunity to talk to a friendly face in a private and comfortable environment
- Information and support in determining what financial benefits are available, support in making applications and help to challenge decisions
- Links to the clinical and specialist nursing teams, Oncology Health Centre, local and national support services and support groups in the area
For those visiting, there is no need to make an appointment feel free to drop in when you wish.
Macmillan Cancer Information Centre
The Queen's Centre for Oncology
Castle Hill Hospital
Alternatively you can telephone: 01482 461 154 / 08088 080 000
Marie Curie Cancer Care is a charity dedicated to the care of people with terminal illness. Marie Curie provides high quality end of life care through its Marie Curie Nursing Service and its Marie Curie Hospices. For further information please visit the website.
Locally our Marie Curie nurses and healthcare assistants make it possible for people to spend their last days at home, rather than in hospital. Marie Curie Nursing Services are available in the East Riding of Yorkshire. For further details contact 01482 347 983.
Dying Matters is a coalition of 32,000 members across England and Wales which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.
They provide access to information and resources to help people be more open about their own experience of end of life. They offer an opportunity to connect with an on-line community of people and offer a means to find help near you.
Alternatively you can telephone them on free phone (usual terms and conditions apply) on: 08000 214 466.
The National Council for Palliative Care (NCPC)
The National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.
The NCPC offers advice, information and support to; professionals, patients and their carers. Their aim is to work collectively to raise the standards of palliative and end of life care.
You can also telephone them on: 02076 971 520 (usual network rates apply).